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About Lily Lily is our little unicorn. Unique and special in so many ways. At birth, Lily had trouble taking her bottle. The doctors tried everything, but in a few short days she was deemed failure to thrive. Lily had a nasogastric tube (NG tube) to help her get the formula she needed. At 3 …

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About Jett This is our younger son, Jett. Also known as our Jettyboy! He was diagnosed in July 2020 with CHAMP1 and he truly is our Champ! This ultra rare genetic mutation causes severe speech delay and intellectual disability, but that doesn’t stop our sweet boy! He continues to persevere, always showing us that God …

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Jeffrey Jr (JJ)

About JJ Jeffrey Jr (JJ) is our oldest son and our miracle boy. “JJ” his rare neurological condition causes severe speech disorders, seizures, cyclical vomiting, and intellectual disability. Our Son is a CHAMP1ON who fought for his life the minute he was born and we have never stop fighting for him since. He shows unconditional …

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