Month: September 2020

When they first discover their child is suffering from a genetic condition many parents turn to the internet for knowledge and to connect with families going through the same experience. Full story here

It didn’t take long for Jeff and Katis D’Angelo to realize that something was up with JJ, their newborn son. The biggest indicator that something was off was that the youngster didn’t cry. Initially, the boy was diagnosed with cerebral palsy. JJ failed to reach essentially all of his earliest developmental milestones. Despite the diagnosis, …

The Story of the Champ1 Research Foundation Read More »

Like many in rare disease, Jeff D’Angelo is in a race against time to find a treatment for his son JJ. This sense of urgency led to the formation of the Champ 1 Foundation, who are driving clinical research with the laser focused mission to improve lives of those affected by Champ 1 gene disorders. …

“Fighting For Our Champs” – Rare Revolution Read More »