Making the Impossible Happen

Welcome to

Who We Are: The CHAMP1 Foundation is an organization created for parents of children with developmental delay, hypotonia, cerebral palsy, autism, and epilepsy among many other diagnoses a result of a change in the CHAMP1 gene.

Our Vision: Our vision is to find effective treatments and a cure for CHAMP1 disorders.

Our Mission: Our mission is to improve the lives of those affected by CHAMP1  through clinical research, effective treatments, public awareness, early detection, family support and patient advocacy

Goals To coordinate and collaborate with the global scientific community to understand the function of the CHAMP1 gene in order to develop effective treatments and a cure for CHAMP1 disorders.

To increase the medical community and public awareness of the complexity and potential severity of CHAMP1 disorders.

To provide educational and emotional support for those affected by CHAMP1 disorders.