Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Angel Flight NEThe Orphan Disease CenterCHAMP1 Research Foundation - EuropeRare Revolution MagazineSimons SearchlightGlobal Genes - Rare Foundation AllianceCoriell InstituteProbably GeneticNational Organization for Rare Disorders (NORD)Patient WorthyPatient Airlift Services (PALS)Children's Hospital of PhiladelphiaRARE-XCHAMP1 UKRare Epilepsy Network (REN)Combined Brain