Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterAngel Flight NECombined BrainRare Revolution MagazineRare Epilepsy Network (REN)CHAMP1 Research Foundation - EuropeSimons SearchlightCHAMP1 UKPatient WorthyNational Organization for Rare Disorders (NORD)Global Genes - Rare Foundation AllianceCoriell InstituteRARE-XChildren's Hospital of PhiladelphiaProbably GeneticPatient Airlift Services (PALS)
