Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Rare Revolution MagazinePatient Airlift Services (PALS)Children's Hospital of PhiladelphiaRare Epilepsy Network (REN)National Organization for Rare Disorders (NORD)Global Genes - Rare Foundation AllianceSimons SearchlightCoriell InstituteRARE-XCHAMP1 UKThe Orphan Disease CenterPatient WorthyAngel Flight NECHAMP1 Research Foundation - EuropeCombined BrainProbably Genetic