Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Probably GeneticRare Epilepsy Network (REN)Patient WorthySimons SearchlightCombined BrainCHAMP1 UKCHAMP1 Research Foundation - EuropeThe Orphan Disease CenterAngel Flight NEGlobal Genes - Rare Foundation AllianceNational Organization for Rare Disorders (NORD)Children's Hospital of PhiladelphiaPatient Airlift Services (PALS)Coriell InstituteRARE-XRare Revolution Magazine