Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Patient WorthyRare Revolution MagazineCoriell InstituteThe Orphan Disease CenterAngel Flight NEProbably GeneticNational Organization for Rare Disorders (NORD)Children's Hospital of PhiladelphiaCombined BrainRare Epilepsy Network (REN)Patient Airlift Services (PALS)CHAMP1 UKGlobal Genes - Rare Foundation AllianceCHAMP1 Research Foundation - EuropeSimons SearchlightRARE-X