Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Coriell InstitutePatient Airlift Services (PALS)Combined BrainRARE-XNational Organization for Rare Disorders (NORD)Children's Hospital of PhiladelphiaSimons SearchlightRare Revolution MagazinePatient WorthyRare Epilepsy Network (REN)CHAMP1 UKGlobal Genes - Rare Foundation AllianceAngel Flight NECHAMP1 Research Foundation - EuropeThe Orphan Disease CenterProbably Genetic