You are not alone!
This organization exists for the purpose of welcoming and supporting new families as we work together to pave the way for a better future.
We are creating a path for children with CHAMP1 disorders to receive treatment through research and our community working together.
Here's How You Can Get Involved
1. Join our family Support Facebook Group
2. Dr. Hakonarson from the Children's Hospital of Philadelphia explains the ongoing partnership and project.
3. Deborah Requesens explains how we have made Coriell Institute our Repository for CHAMP1
For more information and how to participate