Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Probably GeneticAngel Flight NEPatient WorthyCHAMP1 UKRare Epilepsy Network (REN)CHAMP1 Research Foundation - EuropeThe Orphan Disease CenterPatient Airlift Services (PALS)Coriell InstituteChildren's Hospital of PhiladelphiaGlobal Genes - Rare Foundation AllianceRare Revolution MagazineRARE-XCombined BrainNational Organization for Rare Disorders (NORD)Simons Searchlight