Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterRARE-XPatient WorthyGlobal Genes - Rare Foundation AllianceCHAMP1 UKPatient Airlift Services (PALS)Rare Epilepsy Network (REN)CHAMP1 Research Foundation - EuropeCombined BrainAngel Flight NERare Revolution MagazineNational Organization for Rare Disorders (NORD)Children's Hospital of PhiladelphiaCoriell InstituteProbably GeneticSimons Searchlight
