Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Combined BrainSimons SearchlightChildren's Hospital of PhiladelphiaAngel Flight NENational Organization for Rare Disorders (NORD)Patient Airlift Services (PALS)CHAMP1 Research Foundation - EuropeThe Orphan Disease CenterRare Revolution MagazineRARE-XGlobal Genes - Rare Foundation AllianceRare Epilepsy Network (REN)Coriell InstitutePatient WorthyCHAMP1 UKProbably Genetic