Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals National Organization for Rare Disorders (NORD)Rare Epilepsy Network (REN)CHAMP1 Research Foundation - EuropeAngel Flight NECoriell InstituteRARE-XChildren's Hospital of PhiladelphiaThe Orphan Disease CenterProbably GeneticGlobal Genes - Rare Foundation AlliancePatient Airlift Services (PALS)CHAMP1 UKSimons SearchlightRare Revolution MagazineCombined BrainPatient Worthy
