Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Rare Revolution MagazineSimons SearchlightCHAMP1 UKPatient Airlift Services (PALS)CHAMP1 Research Foundation - EuropeRare Epilepsy Network (REN)Combined BrainProbably GeneticCoriell InstituteChildren's Hospital of PhiladelphiaPatient WorthyAngel Flight NEThe Orphan Disease CenterRARE-XNational Organization for Rare Disorders (NORD)Global Genes - Rare Foundation Alliance
