Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Rare Epilepsy Network (REN)Combined BrainNational Organization for Rare Disorders (NORD)RARE-XProbably GeneticCHAMP1 Research Foundation - EuropeAngel Flight NEPatient WorthyGlobal Genes - Rare Foundation AllianceCHAMP1 UKPatient Airlift Services (PALS)The Orphan Disease CenterRare Revolution MagazineChildren's Hospital of PhiladelphiaSimons SearchlightCoriell Institute
