Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterRARE-XChildren's Hospital of PhiladelphiaCoriell InstitutePatient Airlift Services (PALS)Angel Flight NERare Epilepsy Network (REN)Global Genes - Rare Foundation AllianceSimons SearchlightCHAMP1 UKCHAMP1 Research Foundation - EuropeCombined BrainRare Revolution MagazineProbably GeneticNational Organization for Rare Disorders (NORD)Patient Worthy