Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals CHAMP1 UKCombined BrainSimons SearchlightGlobal Genes - Rare Foundation AlliancePatient WorthyRARE-XRare Epilepsy Network (REN)CHAMP1 Research Foundation - EuropeRare Revolution MagazineProbably GeneticChildren's Hospital of PhiladelphiaThe Orphan Disease CenterAngel Flight NECoriell InstituteNational Organization for Rare Disorders (NORD)Patient Airlift Services (PALS)