Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterPatient Airlift Services (PALS)Rare Epilepsy Network (REN)Patient WorthyRare Revolution MagazineNational Organization for Rare Disorders (NORD)CHAMP1 Research Foundation - EuropeSimons SearchlightCHAMP1 UKCombined BrainProbably GeneticChildren's Hospital of PhiladelphiaGlobal Genes - Rare Foundation AllianceCoriell InstituteAngel Flight NERARE-X
