Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Combined BrainGlobal Genes - Rare Foundation AllianceNational Organization for Rare Disorders (NORD)Probably GeneticCoriell InstituteAngel Flight NECHAMP1 Research Foundation - EuropeSimons SearchlightRARE-XRare Revolution MagazineThe Orphan Disease CenterPatient Airlift Services (PALS)Patient WorthyCHAMP1 UKRare Epilepsy Network (REN)Children's Hospital of Philadelphia
