Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Children's Hospital of PhiladelphiaGlobal Genes - Rare Foundation AllianceCHAMP1 Research Foundation - EuropeSimons SearchlightPatient Airlift Services (PALS)CHAMP1 UKAngel Flight NERare Epilepsy Network (REN)Patient WorthyCombined BrainRARE-XRare Revolution MagazineThe Orphan Disease CenterProbably GeneticCoriell InstituteNational Organization for Rare Disorders (NORD)
