Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterAngel Flight NECHAMP1 Research Foundation - EuropeNational Organization for Rare Disorders (NORD)Combined BrainCoriell InstituteSimons SearchlightRare Epilepsy Network (REN)Patient Airlift Services (PALS)Global Genes - Rare Foundation AllianceProbably GeneticRARE-XChildren's Hospital of PhiladelphiaRare Revolution MagazinePatient WorthyCHAMP1 UK