Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Rare Epilepsy Network (REN)Coriell InstituteThe Orphan Disease CenterNational Organization for Rare Disorders (NORD)Rare Revolution MagazineAngel Flight NERARE-XCHAMP1 UKPatient WorthyGlobal Genes - Rare Foundation AllianceSimons SearchlightCombined BrainChildren's Hospital of PhiladelphiaPatient Airlift Services (PALS)CHAMP1 Research Foundation - EuropeProbably Genetic
