Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals RARE-XPatient WorthyRare Revolution MagazineThe Orphan Disease CenterSimons SearchlightNational Organization for Rare Disorders (NORD)Probably GeneticCombined BrainPatient Airlift Services (PALS)Children's Hospital of PhiladelphiaCHAMP1 Research Foundation - EuropeGlobal Genes - Rare Foundation AllianceCoriell InstituteAngel Flight NERare Epilepsy Network (REN)CHAMP1 UK
