Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals National Organization for Rare Disorders (NORD)RARE-XChildren's Hospital of PhiladelphiaCHAMP1 Research Foundation - EuropeAngel Flight NERare Epilepsy Network (REN)Global Genes - Rare Foundation AllianceProbably GeneticPatient Airlift Services (PALS)CHAMP1 UKThe Orphan Disease CenterCombined BrainCoriell InstitutePatient WorthyRare Revolution MagazineSimons Searchlight
