Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Angel Flight NEProbably GeneticRARE-XGlobal Genes - Rare Foundation AlliancePatient Airlift Services (PALS)Rare Epilepsy Network (REN)CHAMP1 UKRare Revolution MagazineNational Organization for Rare Disorders (NORD)Simons SearchlightPatient WorthyCHAMP1 Research Foundation - EuropeChildren's Hospital of PhiladelphiaCombined BrainThe Orphan Disease CenterCoriell Institute