Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Children's Hospital of PhiladelphiaGlobal Genes - Rare Foundation AlliancePatient WorthyProbably GeneticSimons SearchlightAngel Flight NERARE-XPatient Airlift Services (PALS)The Orphan Disease CenterCHAMP1 UKRare Epilepsy Network (REN)Rare Revolution MagazineCombined BrainCoriell InstituteNational Organization for Rare Disorders (NORD)CHAMP1 Research Foundation - Europe