CHAMP1 Family & Science Conference

Attendee Feedback

Please provide help us improve future conferences and events by sharing your feedback on the 5th CHAMP1 Family & Science Conference in Rimini, Italy.
This can be left anonymously, or you can provide your name at the end.

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About You

Describe your party: *

Adult(s) with a CHAMP
Adult(s) only (without a CHAMP)
Adult(s), CHAMP, and other children

Location & Travel

How would you rate Rimini as a location for this event (convenience, accessibility, atmosphere)? *

1 - Not good at all
2
3
4
5 - Excellent

Please tell us why you gave that rating:

Was your travel to Rimini straightforward, or would you have liked more assistance planning it? *

It was straightforward enough
I would have liked more support

What kind of support would have helped you?

Do you have any advice on how to make the location better for next time?

Communication

How was the amount of information provided to you before the conference? *

Not enough
Just right
Too much

Which parts were missing or redundant?

Was the communication smooth and timely enough to allow you to plan your trip? *

No, not really
Yes

Please explain why:

Any advice on how we can improve communication next time?

Hotel & Hospitality

How would you rate the hotel hospitality (rooms, service, common areas)? *

1 - Unsatisfactory
2
3
4
5 - Excellent

How would you rate the hotel value for money? *

1 - Expensive
2
3
4
5 - Great Value

How suitable was the hotel for the conference needs (space, accessibility)? *

1 - Not suitable
2
3
4
5 - Perfect

What specifically did you find inadequate?

Any ideas on how to improve the hotel experience next time?

Meals

How would you rate the lunches at the hotel? *

1 - Unsatisfactory
2
3
4
5 - Excellent

How was the value for money of the lunches (approx €30 per person)? *

1 - Overpriced
2
3
4
5 - Great Value

How would you rate the dinners (Rose & Crown and Piadineria)? *

1 - Unsatisfactory
2
3
4
5 - Excellent

How was the value for money of the dinners (€15-€20 per person)? *

1 - Overpriced
2
3
4
5 - Great Value

How important is it to you that families have the chance to eat together? *

1 - Not important
2
3
4
5 - Very Important

What type of meal arrangement would you prefer for future events? *

Family-style (Simple, good quality, affordable)
Premium (Higher quality, higher price)
A mix of the two
No preference (I will adapt)
I prefer to manage my own meals

Would you be willing to pay more to dine inside the hotel? *

I prefer the cheapest option, even if it's outside
I prefer the hotel if the price difference is small
I prefer the hotel regardless of cost
I prefer to dine out regardless of cost

Kids Room & Childcare

Did you use the Kids Room service? *

Why did you choose not to use it?

Do you feel comfortable leaving your CHAMP in the Kids Room? *

No
Yes
Only under certain conditions

Could you explain why?

What conditions would need to be met?

How would you rate the Kids Room service?

1 - It didn't work for us
2
3
4
5 - It worked perfectly

Would you be willing to pay a contribution for professional childcare next time? *

Yes
No
I don't need childcare services

Do you have any advice on how to improve the childcare for next time?

General Logistics

How do you feel about the overall cost of attending the conference? *

1 - Very Expensive
2
3
4
5 - Very Affordable

Which specific costs would you like to see reduced?

When organizing the next event, what should be the priority? *

1 - Low Cost is most important
2
3
4
5 - Comfort/Quality is most important

What type of location do you prefer? *

A hotel in a city center (tourist area)
A resort in a quiet area outside the city
I don't have a preference

How important is it that the hotel is accessible by public transport (so you don't need a car)? *

Very Important
Preferable but not essential
Not important

How important is it to have free time away from planned activities? *

1 - Not important
2
3
4
5 - Extremely Important

Would you stay extra days (e.g. Thurs-Mon) to have a more relaxed schedule and more social time? *

No
Maybe
Yes

Research & Clinical Activities

Which research activities did you participate in?

Blood sampling
EEG
Genotype/Phenotype Interview

If you missed any, was there a specific reason? (e.g., fully booked, not interested)

How important do you consider these research activities to be? *

1 - Not important
2
3
4
5 - Extremely Important

Which therapy assessments did you attend?

Speech Therapy
Neuropsychology
Occupational Therapy / Psychomotricity

If you missed any therapy assessments, was there a specific reason?

How useful did you find these therapy assessments? *

1 - Not useful
2
3
4
5 - Very Useful

Which assessments were specifically useful for your CHAMP?

Speech Therapy
Neuropsychology
Occupational Therapy

Please tell us why they were useful:

How valuable do you consider the families’ YouTube interview? *

1 - Not valuable
2
3
4
5 - Extremely Valuable

Did you participate in the YouTube interview? *

Why did you choose not to participate?

Any advice on improving these clinical/interview activities?

Friday: Speeches & Roundtable

How interested were you in the Friday speech topics? *

1 - Not interested
2
3
4
5 - Very Interested

How many speeches did you manage to attend? *

None
Some
Most
All

Was there a reason you couldn't attend more?

Which speeches interested you the most?

Did you participate in the family roundtable discussion? *

Why didn't you participate?

Did you find the roundtable useful?

1 - Not useful
2
3
4
5 - Very useful

What did you find most interesting about the roundtable?

Do you have any suggestions to improve the roundtable?

Saturday: Scientific Conference

Note: The Saturday sessions were scientific in nature and primarily aimed at researchers, though families were welcome to observe.

How interested were you in the scientific topics? *

1 - Not interested
2
3
4
5 - Very interested

How many scientific speeches did you attend? *

None
Some
Most
All

Was there a reason you couldn't attend more?

Which scientific speeches interested you the most?

Conference Services

Would you have preferred fewer planned activities? *

No, the schedule was good
Yes, some activities could be reduced

Which activities would you have reduced?

Was the Human Translation service useful? *

I didn't need it
It was useful but not essential
It was essential for me

Any advice on improving translation?

Was the Wordly App translation useful? *

I didn't need it
Useful, but not great
Useful and worked well

Any advice on improving the app translation?

Overall Experience

How much did you like the overall conference experience? *

1 - Not at all
2
3
4
5 - Loved it

Did the event feel worth the cost and effort? *

1 - No
2
3
4
5 - Absolutely

How much did you feel engaged in the conference? *

1 - Not engaged
2
3
4
5 - Very engaged

Did the event provide enough opportunities for families to get to know each other? *

Not enough
Yes, but could be more
Yes, it was enough

Any ideas for improving the social side next time?

Did the schedule allow you enough time to participate in the activities you wanted? *

1 - No
2
3
4
5 - Yes, absolutely

What did you like the most? *

What did you like the least? *

What is your main takeaway from this experience? *

Do you have any final advice for next time?

How often should the European CHAMP1 Family and Science Conference be organized? *

Every year (Alternating Family & Science with just Family Meetup)
Every two years (Only Family & Science)
Every three or more years

How likely are you to participate in the next event? *

1 - Unlikely
2
3
4
5 - Definitely

Optional Details

Your Name (Optional)

First

Last

Country of Residence (Optional)

This helps us understand travel logistics.

Phone