CHAMP1 Awareness Day

March 20th

Please provide images and videos for our CHAMP1 Awareness Day Campaign

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CHAMP1 'This Is Me' Image requirements:

Please answer the following questions an upload an image for use in the 'This is me' image.

Parent/Guardian Name

First

Last

Email (To send completed images to)

CHAMP's Name (Type exactly as you want it to appear on the graphic)

the (For to

CHAMP's Image (For the post)

Click or drag files to this area to upload. You can upload up to 3 files.

The "This is me" Text (Up to 350 characters)

Content for post shared on CHAMP1 Awareness Day:

Please answer the following questions that will help us put together the text to accompany the posts on the CHAMP1 social media pages on CHAMP1 Awareness Day.

What brings your CHAMP the most joy?

Tell us 2-3 things that light them up. (e.g., Do they love music or water? Do they have a laugh that fills the room?)

Celebrate a recent achievement (big or small!)

We celebrate milestones here no matter how big or small they may seem to others! Did they learn a new sign? Master a new skill? Ride a bike? Take a step?

If your CHAMP could tell the world one thing, what would it be?

Be their voice for a moment. What would they want people to understand about them? (e.g., "I understand more than I can say," or "I am brave.")

If you could tell other families that have just been diagnosed something, what would it be?

Think back to how you felt when you first got the diagnosis, what you wish you knew, or needed to hear?

What does the CHAMP1 community meant to you?

How has connecting with other families or the Foundation helped your journey?

Anything else you would like us to add?

Content for "Dance Like No One's Watching" Music Video

Please upload any video of your CHAMP dancing, playing, or just being themself if you would like it included in the updated music video for our CHAMP1 song that will be published on awareness day.

CHAMP's Video (For the song)

Click or drag files to this area to upload. You can upload up to 5 files.

Checkbox Items

I grant CHAMP1 Research Alliance permission to use the submitted PHOTO and TEXT for the 'This Is Me' Awareness Day campaign graphics and social media posts.
I grant CHAMP1 Research Alliance permission to use the submitted VIDEO for the 'Dance Like No One's Watching' music video project and future awareness materials. (If supplied)
I understand that photos, videos, and text may be edited, cropped, or shortened to fit the design templates or music timing.
I acknowledge that these materials (photos/videos) will be shared publicly on social media (Including but not limited to Facebook, Instagram, LinkedIn), YouTube, and the Alliance website.