Board of Directors

Jeff D’Angelo is the Proud father of JJ. Since day one of his son’s birth he has been committed to giving him the best possible chance to succeed. After receiving a diagnosis of CHAMP1 Its been his life’s mission to fuel research in hopes for a cure and of a better life. In addition to co-founding the CHAMP1 Research Foundation, Jeff has served as a teacher, basketball coach and special needs ministry leader at his church. Jeff is a loving father and husband who is motivated daily by his son to do all he can to advocate, spread awareness, further research. You can follow more of JJs story and read blogs from Jeff at www.raisingachamp.com

Jeff D'Angelo

vice President/founder/research committee chair

Katis D’Angelos oldest son, JJ, was diagnosed with a CHAMP1 Gene Mutation in April 2018. Shortly after the discovery of her sons ultra-rare genetic disorder, she started CHAMP1 RESEARCH FOUNDATION, as a means of building the research and awareness for the CHAMP1 community. She believes that partnerships between patients, families, researchers and clinicians is  essential part of understanding CHAMP1, finding treatments, and is hopeful for a cure. She brings her background as a former Bank Manager to run the day to day operations for CHAMP1 RESEARCH FOUNDATION. Katis holds a BA in Marketing Communications from the University of South Flordia. She blogs with her husband at RaisingaChamp1.com

Katis D'Angelo

President/Founder/Finance Committee Chair

Stacey McPherson lives in Bannockburn, Scotland with her husband and two sons. Her eldest son Calum was one of the first to receive the diagnosis of the CHAMP1 gene mutation, When he was seven years old. With no information available about CHAMP1, She made it her mission for newly diagnosed families to have a point of contact after receiving their diagnosis and that’s when she set up the www.champ1gene.com website. This also gives newly diagnosed families a link into the CHAMP1 Facebook Group and connects them with all the other families. Stacey loves spending time with her family. She has watched Calum bloom into a very handsome young man, He has a infectious laugh. Stacey is currently juggling being home and working. She is a mum on a mission doing her best to raise awareness for the CHAMP1 community.

Stacey McPherson

community support chair

Debbie Dunsmore and her husband Mark are proud owners of a Commercial Refrigeration company and have worked very closely together  for the last 15 years. They are hard working in their community and take pride in everything they do. She considers herself blessed to be mother of three. She endured a devastating experience herself, 16 years ago when her daughter was diagnosed with Type 1 Diabetes. She is committed to help and support her community and families in need. She has a Love for humanity and helping children and is now leading the charge fundraising for CHAMP1 families.

Debbie Dunsmore

Fundraising chair